News & Updates
MoMMA's Voices awarded new funding to further amplify BIPOC and other historically marginalized patient voices in maternal health
January 27, 2022 - The Preeclampsia Foundation announced today that Merck for Mothers has awarded new funding for its program, MoMMA’s Voices, a national coalition of patient advocacy organizations and individuals with "lived experience" – or those that represent them. Merck for Mothers is Merck’s global initiative to help create a world where no woman has to die while giving life.
With this new grant, MoMMA's Voices is preparing to engage hundreds of new patient and family partners (PFPs) across the U.S. in 2022. This program teaches both advocates and providers how to use the Lived Experience Integration™ framework to engage as partners wherever maternal health improvements are needed.
How the Lived Experience Integration™ and sharing of personal stories is making an impact:
○ Leads to a more focused commitment by quality improvement teams
○ Creates a culture of trust and acceptance between patients, families and providers
○ Reveals new solutions and insights through patient perspectives
○ Identifies confusing or missing pieces of processes
○ Assists in developing action plans and recommendations
○ Contributes to the content and design of materials
○ Pilots and tests new materials and processes
○ Expands research participation and information collection
The U.S. continues to face a maternal mortality crisis. According to the Centers for Disease Control and Prevention (CDC), at least 60% of these deaths are preventable. Black, Indigenous, and People of Color (BIPOC) are disproportionately affected. MoMMA's Voices is providing grant writing, execution, and reporting support specifically for BIPOC led organizations to build capacity to address this head-on. This effort will aim to increase BIPOC representation as patient and family partners nationwide.
“MoMMA’s Voices breaks down silos between maternal health organizations to amplify lived patient experiences that represent the voices of the women and their families affected by maternal health conditions,” said Eleni Tsigas, chief executive officer of the Preeclampsia Foundation. “The continued funding of our patient-centric work ensures patients continue to have a role in addressing the U.S. maternal health crisis.”
About MoMMA's Voices
MoMMA's (Maternal Mortality and Morbidity Advocates) Voices is the first-ever maternal health patient advocacy coalition established in 2018, to amplify the voices of people who have experienced childbirth complications or loss - especially those who have been historically marginalized - ensuring they are equipped and activated as partners with providers and researchers to improve maternal health outcomes. This is a program of the Preeclampsia Foundation, a 501(c)(3) non-profit organization, and is supported by a grant through Merck for Mothers. For more information, visit mommasvoices.org and preeclampsia.org.
MoMMA's Voices and AIM launch the first-ever Lived Experience Integration™ into QI Community of Learning in 23 States
January 13, 2022 - MoMMA's Voices and the Alliance for Innovation on Maternal Health (AIM) have partnered to provide an enhanced integration of lived experiences into Quality Improvement (QI) initiatives to foster safe, respectful, and equitable care to pregnant and postpartum people.
“The integration of patients’ lived experience into quality improvement teams is critical to the success of our efforts to decrease maternal morbidity and mortality in the U.S.,” said AIM.
The Lived Experience Integration into QI Community of Learning training program is an eight-week educational series created by MoMMA’s Voices and funded by AIM. The program will run January to May 2022 and will serve three cohorts of 23 AIM state teams, territory teams, Indian Health Services facilities, and other healthcare entities.
During the eight-week AIM COL program, each cohort will learn how to effectively build a patient engagement culture centered on the Lived Experience Integration™, a concept developed by MoMMA’s Voices. The program teaches how to perform work that integrates patients and families with lived experience into patient safety bundle implementation and other QI initiatives.
“Partnering with AIM is an important milestone to amplify the patient voice for maternal healthcare improvements here in the United States,” said Nicole Purnell, Program Director of MoMMA's Voices. “Most importantly, the AIM COL program focuses on the inclusion of lower-resourced communities and special populations who we know are falling through the cracks of maternal healthcare in order to address healthcare disparities.”
MoMMA’s Voices offers certified training for patient family partners, organizations that represent them, maternal healthcare providers, and researchers to partner together effectively. The Lived Experience Integration™ is the framework that guides healthcare providers to partner and integrate the patient or family members’ “lived experiences” into their work. To keep patients at the center of quality improvement, providers and healthcare facilities are matched with certified patient family partners that best represent the communities they serve. Through these partnerships, the patient voice is used to improve maternal health outcomes.
About MoMMA’s Voices
MoMMA’s (Maternal Mortality and Morbidity Advocates) Voices is the first-ever maternal health patient advocacy coalition established in 2018, to amplify the voices of people who have experienced childbirth complications or loss - especially those who have been historically marginalized - ensuring they are equipped and activated as partners with providers and researchers to improve maternal health outcomes. This is a program of the Preeclampsia Foundation, a 501(c)(3) non-profit organization, and is supported by a grant through Merck for Mothers. For more information, visit mommasvoices.org and preeclampsia.org.
The Alliance for Innovation on Maternal Health (AIM) is a national data-driven maternal safety and quality improvement initiative. AIM works through state teams and health systems to align national, state, and hospital level engagement efforts to improve overall maternal health outcomes. Based on proven safety and quality implementation strategies, AIM works to reduce preventable maternal mortality and severe morbidity across the United States. AIM is funded through a cooperative agreement between the American College of Obstetricians and Gynecologists (ACOG) and the Maternal and Child Health Bureau (MCHB)-Health Resource Services Administration through August 2023. For more information, visit https://safehealthcareforeverywoman.org/aim/.
HHS Announces MoMMA’s Voices as Advisory Panel for a New 200-Hospital Maternal and Infant Care Collaborative
October 21, 2021 -
This is a program of the Preeclampsia Foundation, a 501(c)(3) non-profit organization, and is supported by a grant through Merck for Mothers. For more information, visit mommasvoices.org and preeclampsia.org.
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