Voices of lived experiences.
Partners in maternal health.
Coalition Members
Maternal Health Organizations
AFE Foundation
Our mission is to spur research, raise public awareness and provide support for those whose lives have been touched by the often-fatal maternal health complication known as amniotic fluid embolism (AFE).
Allo Hope Foundation
Our mission is to prevent any harm, stillbirth or infant death caused by alloimmunization and HDFN. We are dedicated to providing patient advocacy, support and education while promoting research and improving healthcare practices for the condition.
APS Foundation
The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated specifically to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, and young strokes and heart attacks. We are a volunteer-run, community-based, non-profit organization.
Black Women's Health Imperative
To lead the effort to solve the most pressing health issues that affect Black women and girls in the U.S. Through investments in evidence-based strategies, we deliver bold new programs and advocate health-promoting policies.
Cherished Mom
Our mission is to promote awareness, education and support for perinatal mood and anxiety disorders to moms, families, healthcare professionals and the community. We provide free support groups, educational resources, incentive programs as well as advocacy and awareness! We aim to address the knowledge gap for perinatal families through innovative approaches. Our vision is a world free of stigma surrounding maternal mental health, where no mom feels alone and feels comfortable seeking the help they need.
Dr. Shalon's Maternal Action Project
Our mission is to increase awareness of and concern for the Black maternal health crisis; develop and promote evidence-based strategies that improve health outcomes for Black women; and advocate for policy changes.
End Sepsis
To reduce the number of sepsis-caused deaths through:
Raising public awareness of sepsis through education and awareness programs to promote faster diagnosis and effective treatment for children and young adults.
Improving medical diagnosis of sepsis, particularly pediatric sepsis, through the implementation of rapid treatment protocols and improved communication between parents and medical staff in hospitals and medical clinics.
Supporting those affected by sepsis and providing a platform for their voices to be heard.
Every Mother Counts
We envision a world where all women have the opportunity to enter motherhood and not only survive, but thrive.
We work to achieve quality, respectful, and equitable maternity care for all by giving grants and working with partners and thought leaders to increase awareness and mobilize communities to take action.
EVERY MOTHER COUNTS’ MISSION IS TO MAKE PREGNANCY AND CHILDBIRTH SAFE FOR EVERY MOTHER, EVERYWHERE.
HER Foundation
HER mission is to find a cause and cure through research, to provide clinical resources and support for those seeking effective management strategies, and to advocate for improved access to medical care globally.
The HER Foundation is the world's largest network of HG survivors and the leading website for HG information. HER is dedicated to helping those suffering with HG and those who have survived it. In 2003, HER was created as a global voice of hope and understanding for women with HG. Our mission is to find a cure through research, to provide education and support for those seeking effective management strategies, and to provide information to family and friends who may not understand what their loved one is enduring.
Let's Talk PPCM
The mission for the LetsTalkPPCM Non-Profit Organization is to eradicate Peri Partum Cardiomyopathy as a life-threatening heart disease found in pregnancy by advancing research, education, screening, treatment, events and films.
Maternal Near Miss Support Group
As a maternal near-miss survivor, Marianne Drexler brings her personal experience of surviving a massive hemorrhage after the birth of her second child which resulted in an emergency postpartum hysterectomy. Marianne is dedicated to sharing the patient and family experience of unexpected outcomes of childbirth, the postpartum period and beyond. In 2016, she launched the online support group, Maternal Near-Miss Survivors and currently serves as a patient-family advisory council member at the hospital where she gave birth.
Mom Congress
Mom Congress™ is the policy organization for moms in the U.S. – a mother’s membership organization that is addressing the most pressing policy issues of motherhood including what we call the “motherload” (the stress that U.S. mothers carry, at higher rates than other developed countries).
National Accreta Foundation
Our Mission: Eliminating preventable maternal mortality and severe maternal morbidity attributable to placenta accreta.
Our Focus: Increasing awareness of accreta and cesarean overuse, advocating for moms and babies, and connecting patients & providers with resources to help improve quality of care.
PCOS Challenge
PCOS is one of the most critical, under-diagnosed, underfunded and neglected areas of health. There is a huge health disparity when it comes to PCOS diagnosis and support. 50% of women and girls with PCOS are going undiagnosed or misdiagnosed. Additionally, it often takes women several years and up to seven doctors before they can find someone who can help them with the condition. Despite affecting millions of lives and families and the serious health consequences, PCOS awareness and support organizations, receive less than 0.1% of the government, corporate, foundation, and community funding that other major health conditions receive. The lack of funding extends into PCOS research, stifling advancements. Our vision is that PCOS is treated as a public health priority.
PPROM Foundation
The PPROM Foundation aims to provide resources and support for those who have experienced Preterm Premature Rupture of Membranes (PPROM) in their pregnancy and beyond. We promote awareness of PPROM through: Advocacy in Expectant Management, conducted by PPROM parents through support groups and individual consultations. Partnerships with healthcare providers, hospitals, and organizations who support maternal, fetal / neonatal health, research, and person-centered care in Expectant Management. The pProm Registry of individuals diagnosed with PPROM in pregnancy. Through the collection of self-reported data by volunteers who have endured a pProm diagnosis in pregnancy, we will survey trends in expectant management, outcomes, and long term effects in survivors. A database of information about this syndrome will be critical in bringing new therapies to the market through research and advocacy.
Preeclampsia Foundation
The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices. We envision a world where preeclampsia no longer threatens the lives of mothers and babies.
Push Birth Partners
Push is a community-based organization comprised of frontline health workers and prenatal care providers. Our mission is to partner with women and expectant families for improved maternal health experiences and outcomes through a trusted partnership and support system. We act on the need for better quality of care, accessibility, cultural humility, responsiveness, and sensitivity. While our emphasis is the uninsured, underserved, and high-risk groups, Push offers services to all mothers and birthing families, including those who are just looking for extra support and community.
PUSH for Empowered Pregnancy
PUSH exists for one reason and one reason alone: to end preventable stillbirth. We are a national organization targeting the entire US, and serve all pregnant and birthing people, with a specific focus on reaching the marginalized communities that are at the highest risk of stillbirth. #UnitedWePush For Families, For Babies, For Change.
Save the Mommies
Our mission is to advocate, educate, further research & aid in the prevention of Peripartum Cardiomyopathy; a form of heart failure solely brought on by pregnancy. We promise to provide emotional and financial support to women and their families that have been deeply affected as a result of this deadly and often over looked condition. All donations will go to increasing awareness, education and research. But most importantly help the families that are financially crippled after receiving this heart failure diagnosis during and/or after pregnancy. Most women cannot return to work after a PPCM diagnosis. It can take anywhere from three months to a year, if ever.
Shades of Blue Project
The Shades of Blue Project is dedicated to breaking cultural barriers in maternal mental health by raising awareness and ensuring action is being taken to break the stigma surrounding seeking treatment in the minority community when experiencing complications after childbirth. We respect every woman and their birth story no matter the outcome, we all have a story and no one experience is the same. Our goal is to support the women we serve who seek help before pregnancy with education readiness, and during pregnancy so that they are aware of potential issues in the postpartum period and after child-birth with maternal mental health advocacy, treatment and support.
Sisters in Loss
Erica M. McAfee is the Founder of Sisters in Loss, a digital media platform dedicated to helping millennial black women replace silence with storytelling around pregnancy and infant loss and infertility.
Its self-titled podcast is the first and only podcast that spotlights resilient black mothers who share intimate details of their journey to motherhood through loss and infertility stories. Sisters in Loss has been featured in Black Enterprise Magazine, Women’s Health Magazine, and Refinery 29 as a resource to heal, gain clarity and peace, and find hope after loss. Launched in August 2017 the podcast has amassed a community of 20,000+ Sisters in Loss worldwide
Erica is a Birth and Bereavement Doula, Grief Specialist, Mom to two angels in heaven and one rainbow baby Maxwell also known as Super Mighty Max. She is an alumnus of Virginia Commonwealth University (VCU) with a B.S. in Chemical Engineering.
Urban Baby Beginnings
Urban Baby Beginnings is a nonprofit 501c3 focused on improving perinatal and postpartum health outcomes. Our goal is to strengthen maternal and infant community based services so that every family that seeks support has access. UBB's ongoing efforts include expanding access to community based maternal health hubs, improving quality and safety in care through the use of collaborative care models, building perinatal specialists workforce including MCH Community Health Workers and Community Doulas, and advocacy in the State of Virginia.
TESTIMONIALS
What Others Are Saying
“The Patient Family Partner Training will be a key part of our onboarding for our global ambassador program. This training will ensure our ambassadors are prepared to be advocates and support our organization's mission.”
Alexis Carena
National Accreta Foundation
“After attending the Champions for Change Summit, I realized the value of the shared learning and power of the community uniting together. I knew it was something that I wanted to bring more people to so they could experience it as well.”
Kay Matthews
Shades of Blue Project
This is a program of the Preeclampsia Foundation, a 501(c)(3) non-profit organization, and is supported by a grant through Merck for Mothers. For more information, visit mommasvoices.org and preeclampsia.org.
3840 W Eau Gallie Blvd, Suite 104
Melbourne, FL 39234
United States of America
mommas.voices@preeclampsia.org
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