Maternal Mortality and Morbidity Advocates
Who We Are
As advocates to eliminate maternal mortality and severe morbidity, the coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in the United States. The coalition provides training and tools to prepare “champions for change.”
We look at cross-cutting issues such as quality and consistency of healthcare delivery, patient-provider communications, racial disparities, inadequate research funding, and other leading contributors to adverse outcomes in pregnancy and the postpartum period.
MoMMA’s Voices is a national coalition of patient organizations and individuals with “lived experiences” – or those that represent them – using their voice to reduce maternal complications in pregnancy and the postpartum period.
We invite all those who experienced, or whose loved one experienced, any of the leading causes of death, near misses and severe morbidity such as preeclampsia, postpartum hemorrhage, amniotic fluid embolism, placenta accreta, cardiovascular disease, mental health and other medical complications of pregnancy.
If you are a leader of a patient advocacy organization and would like to join the MoMMA's Voices Coalition, please visit our membership section below to read more about benefits, policies and to apply.
The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices. We envision a world where preeclampsia no longer threatens the lives of mothers and babies.
We envision a world where all women have the opportunity to enter motherhood and not only survive, but thrive.
We work to achieve quality, respectful, and equitable maternity care for all by giving grants and working with partners and thought leaders to increase awareness and mobilize communities to take action.
EVERY MOTHER COUNTS’ MISSION IS TO MAKE PREGNANCY AND CHILDBIRTH SAFE FOR EVERY MOTHER, EVERYWHERE.
The Shades of Blue Project is dedicated to breaking cultural barriers in maternal mental health by raising awareness and ensuring action is being taken to break the stigma surrounding seeking treatment in the minority community when experiencing complications after childbirth. We respect every woman and their birth story no matter the outcome, we all have a story and no one experience is the same. Our goal is to support the women we serve who seek help before pregnancy with education readiness, and during pregnancy so that they are aware of potential issues in the postpartum period and after child-birth with maternal mental health advocacy, treatment and support.
As a maternal near-miss survivor, Marianne Drexler brings her personal experience of surviving a massive hemorrhage after the birth of her second child which resulted in an emergency postpartum hysterectomy. Marianne is dedicated to sharing the patient and family experience of unexpected outcomes of childbirth, the postpartum period and beyond. In 2016, she launched the online support group, Maternal Near-Miss Survivors and currently serves as a patient-family advisory council member at the hospital where she gave birth.
Erica M. McAfee is the Founder of Sisters in Loss, a digital media platform dedicated to helping millennial black women replace silence with storytelling around pregnancy and infant loss and infertility.
Its self-titled podcast is the first and only podcast that spotlights resilient black mothers who share intimate details of their journey to motherhood through loss and infertility stories. Sisters in Loss has been featured in Black Enterprise Magazine, Women’s Health Magazine, and Refinery 29 as a resource to heal, gain clarity and peace, and find hope after loss. Launched in August 2017 the podcast has amassed a community of 20,000+ Sisters in Loss worldwide
Erica is a Birth and Bereavement Doula, Grief Specialist, Mom to two angels in heaven and one rainbow baby Maxwell also known as Super Mighty Max. She is an alumnus of Virginia Commonwealth University (VCU) with a B.S. in Chemical Engineering.
Total Reach of Coalition Organizations
The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated specifically to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, and young strokes and heart attacks. We are a volunteer-run, community-based, non-profit organization.
To reduce the number of sepsis-caused deaths through:
Raising public awareness of sepsis through education and awareness programs to promote faster diagnosis and effective treatment for children and young adults
Improving medical diagnosis of sepsis, particularly pediatric sepsis, through the implementation of rapid treatment protocols and improved communication between parents and medical staff in hospitals and medical clinics
Supporting those affected by sepsis and providing a platform for their voices to be heard.
HER mission is to find a cause and cure through research, to provide clinical resources and support for those seeking effective management strategies, and to advocate for improved access to medical care globally.
The HER Foundation is the world's largest network of HG survivors and the leading website for HG information. HER is dedicated to helping those suffering with HG and those who have survived it. In 2003, HER was created as a global voice of hope and understanding for women with HG. Our mission is to find a cure through research, to provide education and support for those seeking effective management strategies, and to provide information to family and friends who may not understand what their loved one is enduring.
PCOS is one of the most critical, under-diagnosed, underfunded and neglected areas of health. There is a huge health disparity when it comes to PCOS diagnosis and support. 50% of women and girls with PCOS are going undiagnosed or misdiagnosed. Additionally, it often takes women several years and up to seven doctors before they can find someone who can help them with the condition. Despite affecting millions of lives and families and the serious health consequences, PCOS awareness and support organizations, receive less than 0.1% of the government, corporate, foundation, and community funding that other major health conditions receive. The lack of funding extends into PCOS research, stifling advancements. Our vision is that PCOS is treated as a public health priority.
The PPROM Foundation aims to provide resources and support for those who have experienced Preterm Premature Rupture of Membranes (PPROM) in their pregnancy and beyond. We promote awareness of PPROM through: Advocacy in Expectant Management, conducted by PPROM parents through support groups and individual consultations. Partnerships with healthcare providers, hospitals, and organizations who support maternal, fetal / neonatal health, research, and person-centered care in Expectant Management. The pProm Registry of individuals diagnosed with PPROM in pregnancy. Through the collection of self-reported data by volunteers who have endured a pProm diagnosis in pregnancy, we will survey trends in expectant management, outcomes, and long term effects in survivors. A database of information about this syndrome will be critical in bringing new therapies to the market through research and advocacy
Our mission is to advocate, educate, further research & aid in the prevention of Peripartum Cardiomyopathy; a form of heart failure solely brought on by pregnancy. We promise to provide emotional and financial support to women and their families that have been deeply affected as a result of this deadly and often over looked condition. All donations will go to increasing awareness, education and research. But most importantly help the families that are financially crippled after receiving this heart failure diagnosis during and/or after pregnancy. Most women cannot return to work after a PPCM diagnosis. It can take anywhere from three months to a year, if ever.
What Others Are Saying
“The Patient Family Partner Training will be a key part of our onboarding for our global ambassador program. This training will ensure our ambassadors are prepared to be advocates and support our organization's mission.”
National Accreta Foundation
“After attending the Champions for Change Summit, I realized the value of the shared learning and power of the community uniting together. I knew it was something that I wanted to bring more people to so they could experience it as well.”
Shades of Blue Project
Patient centric organizations with missions closely tied to maternal mortality and morbidity and/or having a diverse representation of mothers in
Member organizations are non-voting members of the Coalition that provide a link of communication between the Coalition and their constituents.
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